TWO-YEAR-OLD Millie Simpson suffers from type three osteogenisis imperfecta, a severe form of brittle bone disease which means even the slightest knock can cause her bones to break.
When she was born, Millie had 30 broken bones and doctors were convinced she wouldn’t survive the night. But Millie has gone from strength to strength and now, along with her mum Stevie, dad Tyler and big sister Lottie, she is spending time at Claire House Children’s Hospice.
Stevie, 24, said: “In my eyes, having Millie come to Claire House meant I would have to let go, and I didn’t want to do that.
“She had a hip spica cast on her leg and I used it as an excuse for her to stay at home. But when we walked into the hospice, Millie’s face just lit up and I knew we’d done the right thing.
“Coming to Claire House allows her to be independent. She can move around freely in her wheelchair, which was donated to us by the Brittle Bone Society, and loves going in the hydrotherapy pool and Sensory Room, where there’s lots of soft play areas.”
Having Millie come to Claire House has also given Stevie and Tyler, 27, some time together as a couple.
“As young parents, we already had a lot of strain on our relationship and when Millie’s condition was diagnosed when I was 34 weeks pregnant, it made things very hard,” she said.
“Now that we’re accessing the services of Claire House, we can think about going on holiday together and we don’t have to say no to every wedding invitation we get! It’s changed our lives but most of all, Millie loves coming here. It’s the best decision we ever made!”
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