Generous Wirral News readers helping to give Amy Garton Hughes a wedding day to remember

Mar 3 2010 by Lorna Hughes, Heswall News

GENEROUS News readers are helping to give Amy Garton Hughes a wedding day to remember.

The 18-year-old, from Wallasey, will have her relationship with Nick Jaminet, also 18, blessed at a wedding-style ceremony in July.

The couple both have the rare and debilitating premature ageing disorder Cockayne Syndrome and have to keep in touch mainly by phone and the internet because Nick lives in Texas.

Nick and Amy are desperate to be together but their last meeting was in November and their next meeting will be at the service.

It will take place at St David’s Hotel in Queensferry during the 4th annual meet-up for CS families from across the world.

Since our story two weeks ago offers of help have poured in and Amy’s mum Jayne says she is delighted.

The family had some bad news on Friday when they learned Amy is losing her ability to talk, but say they will continue to focus on her upcoming big day and raising awareness of her condition.

Donations and offers of help have so far come in from:

Roy/Maureen Lewis – photography

Hazel – World of Balloons

Vauxhalls – offer of coach for a trip to the zoo and also help purchasing a new fitted wheelchair for Amy

M & S Simply Food, Cheshire Oaks – staff have offered to do a bagpacking to buy mums at the next Cockayne Syndrome retreat chocolates, wine and smellies

Lisa Manning – cake

Katy Dunn – tiara

Liverpool Community College – a cake for the blessing, which Amy will design

Vicci/Corey Lee Merryfield – photography

Jan/Bernie – Wirral Textile Motifs – to add butterflies to Amy's wedding dress

Hollie Sadler – makeup artist.

Another supporter has offered to help pay for flights so Amy’s friends Matthew and Ryan can attend the ceremony.

Jayne said: “I want to say a big thank you to everyone who has offered to help. Amy was screaming when I told her Matthew and Ryan might be coming! She’s made up and she can’t wait for July.

“She and Nick miss each other so much. We just wish we could find a way for them to see each other before the blessing.”